About Milean
Milean is a dedicated health advocate, author, and founder of BPOTS, a platform created to elevate awareness, promote inclusion, and empower individuals living with dysautonomia disorders such as Ehlers-Danlos Syndrome (EDS) and Postural Orthostatic Tachycardia Syndrome (POTS). At just 17 years old, she has transformed her personal health journey into a mission to ensure that patients—especially young ones—are seen, heard, and supported early in their medical experiences.
A Mission Rooted in Personal Experience
Diagnosed with chronic invisible illness at a young age, Milean learned firsthand how challenging it can be to navigate complex symptoms, multiple specialists, and the uncertainty that often accompanies dysautonomia. Her experiences revealed a critical need for accessible resources and stronger patient advocacy. BPOTS was established to meet that need, offering education, community support, and tools designed to help individuals better understand and manage their conditions.
Advocacy Tools Designed for Patients
Through BPOTS, Milean has developed a series of practical advocacy sheets and organizational tools that assist patients in taking an active role in their healthcare. These resources include:
· Structured question guides for medical appointments
· Symptom-tracking templates· Medication and testing logs
· Systems to ensure continuity of information across multiple specialists
Her goal is to equip patients with the confidence and clarity needed to navigate their medical journeys effectively.
Author of Princess Penny and Her Powerful POTS
In addition to her advocacy work, Milean is the published author of Princess Penny and Her Powerful POTS, a children’s book that introduces POTS in a compassionate and accessible way. Through storytelling, she fosters empathy, understanding, and inclusion among young readers, helping families and educators support children living with chronic conditions. Much like her character Penny, Milean lives in Alabama with her parents, siblings, and a lively group of German Shepherds.
Committed to Future Impact
Inspired by her experiences and driven by a desire to improve patient care, Milean plans to pursue a medical-focused college path. Her long-term goal is to contribute to a healthcare environment where dysautonomia and other chronic conditions are recognized early, understood deeply, and treated with the attention they deserve.
Community Engagement
Beyond her work in dysautonomia advocacy, Milean proudly partners with Sleep in Heavenly Peace, an organization dedicated to providing safe beds for children in need. She uses her platform to raise awareness for their mission and supports their efforts throughout her community.
A Voice for Visibility and Inclusion
Through BPOTS, her writing, and her continued advocacy, Milean remains committed to creating a world where individuals with chronic invisible illnesses feel validated, supported, and empowered. Her work reflects a steadfast belief that every voice matters—and that meaningful change begins with awareness, compassion, and education.